Tags
bad news, Clinical trial, CT scan, family, Memorial Sloan-Kettering, next steps, oncologist, Peter, travel
I have soooo much to write about (travels, friends, my brother’s wedding, among many other things), but something happened today that pushed all of that stuff to the side (I was procrastinating anyway, so I guess it won’t make too much of a difference).
During the trip, which was awesome and lovely, I started to get some side pain. I thought it was from having to carry 9+ pieces of heavy luggage down a storey all by myself, not to mention the general joys of packing and unpacking almost every day. I tried really hard not to wear myself out, but there’s only so much you can do, you know! Anyway, I got back from the trip and thanks to my MIL, who came out to take care of us while my parents stayed in Reno for important medical things, I was able to rest quite a bit. I fully expected this pain to get better and go away with a little sleep and time in bed.
Well, it wasn’t getting as better as I had hoped and Peter started to get worried. I wasn’t too worried, but since he is usually pretty calm about things, I called the doc and we set up a CT scan for today (since my PET scan wasn’t scheduled for another week or so). I had the scan and got the results back tonight, which seemed like a crazy quick turn around.
Unfortunately, it was not good news. It looks like one of my kidney mets has grown something like 5-6 cm, my liver met has also grown by a fair bit, as has my adrenal glad met. All in all, not good. It looks like the Keytruda isn’t stopping the melanoma like it had been, so now we need to figure out Plan B. My doc will call the Sloan Kettering doc tomorrow to see what he recommends as a next step (could be a clinical trial or there might be some other option he recommends).
We knew we would get this news at some point, so it’s not shocking or anything. It is too bad, though, that’s for sure. I know I still have a vaguel faint hope that this is just from all the exertion of travel and I’ll rebound, but given the rapid growth, my doc didn’t seem too optimistic that this would be the case 🙂
So keep the thoughts and prayers coming for some new option because I really don’t know what the next steps are for me now!
Julie said:
Sending you warm thoughts, prayers, and white lights!
Katie said:
Sending tons of juju for viable options. I hope you had an amazing trip!
Rosa said:
Shannon, I wish you only the best. I am also a stage IV metastatic melanoma warrior, and I just went in today for SRS to a second brain met. I had the first one exactly last year, removed through craniotomy plus SRS. This is all scary stuff and at times I feel so discouraged but we have to keep going. Stay strong and i’ll pray for you. All the best!
Netty said:
Shannon.. it was so good to see your smiling face.. to hug you… and to finally met Miss Emmie.. and share a magical moment with the family.. I know the traveling and trip took a toll on your body.. So this news is less than good.. but give yourself that window to let your body regroup.. The next step.. One day at a time.. One moment at a time.. XOXOX Netty
(((((((((((((((((((((((((LOVE LIGHT HEALTH))))))))))))))))) (((((((((((((FAITH))))))))))))
((((((((((((SHANNON PETER AND EMMIE)))))))))) (((((((((TRUST))))))))) ((((BELIEVE)))))
((((((((PLAN B = PLAN BE)))))))))) ((((((((((((OPTIONS))))))))))))) (((((REGROUP)))))
((((((((((((GOOD JUJU.. ))))))))) (((((KEEP THAT CRYSTAL CLOSE GOOD ENERGY))))))))
((((((((((((((((((((((((((((((LOVE IS THE ANSWER)))))))))))))))))))))) ((((FIGHT/WRITE)))))) ((((((((((((((((MIRACLES))))))))))))))))) (((((((HUGS)))))))))
(((((((((((((((GOOD NEWS)))))))))))))) (((((((((((((JOY))))))))))))) ((((I LOVE YOU)))))))
Bill Casey said:
Will be sending many prayers….I can’t tell you Shan what a miracle it was to me to see you again. LOVE and always know you are so loved by many as you found out by the trip!!!!! ..Uncle Bill
Rob Hill said:
Love you Shannon, and you’re in our hearts.
Madeleine Adkins said:
You are in my prayers, Shannon. I hope a good Plan B emerges soon.
Lisa said:
Thinking of you!
Annie Vicente said:
You are always in my thoughts and prayers. Stay strong.
Carol said:
It was so wonderful to see you looking so beautiful, strong, and healthy at your brother’s wedding. It’s hard to imagine that in such a short time, things can take a turn like that. Always appreciate your updates–whether good or not-so-good–and sending love and prayers that the setback is temporary, and good news will be on its way again soon. xoxo
Diane & Todd xoxo said:
Well &^*&#$*&#(*@&^*%(#* F’er.
Ok, now that that’s outta the way – Am thinking about you as I (we!!) always do and want a super duper stupendous awesome from your team of docs. And we want it RIGHT NOW!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Love you lots n lots n lots <3
Us xoxo
John said:
Hi Shannon,
So good to see you in Reno. But so sorry to read about the recent developments. I pray for you daily.
Love and aloha,
John