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blogging, cancer, Emmie, family, friends, inspiration?, life has meaning, love, sharing, support, writing
Thank you all for the responses to my last post, here and on Facebook. Several people thanked me for sharing my story, for being so open with what I am thinking and feeling. I’ve probably written about this before, but I think it’s worth revisiting: Why am I doing this? Why am I blogging all of this?
Obviously, there are many reasons, some about you, dear readers, some about me and mine.
Probably the most important person I am writing for is Emmie. She is far too young to read any of this, let alone understand it, but it is my hope that someday she can look back on this body of work and learn a little bit about who her mom was, good and bad. She can read a little about how I felt about her, as well as the things she did as a child. I don’t write everything for her here, though. I also have a journal I am keeping for her with more personal observations and reflections.
I write for myself. I write to process the things I am thinking about, I write to get things out of my head. I also write because I am a little narcissistic, and I like to think that people care about what I am thinking (which may or may not be true). I write because I have a certain quality that some may call honesty, others may call “oversharing,” but in either case, I just cannot keep my trap shut. It also makes life easier for me to not have to retell the same information over and over to people, especially if it’s hard or sad news I have to share.
I write for those out there who are searching for someone else who has been through the same thing. I did a lot of Googling when I was first diagnosed, and still often look for blogs of people when I face something new (like whole brain radiation). Information from doctors is helpful, but they rarely know or understand what it’s REALLY like to live with the side effects of the various drugs, surgeries or other aspects of cancer. I hope that someone who is about to get their first CT scan can find one of my posts about it and learn a little bit about what might happen. Or maybe they will find comfort in knowing that someone else is experiencing crazy weight gain with steroids.
I write for my friends, family and followers. I write so that you can know a little bit about my life and what’s happening, good or bad. I don’t write to inspire you, but I’m happy if that is a side effect of my story. I write because the American Cancer Society has said that one in two people will develop cancer over their lifetime. One in two! As you all get older, more and more of you will be diagnosed with cancer, or have loved ones diagnosed. Even though every story is different and every cancer is different, I hope that my story can help guide those of you who will be affected in some way in the future. Alicia did this for me by sharing her story so bravely and honestly, and I hope to do the same for others (though I hate that it will happen again, inevitably, to someone reading this). Alicia wrote her story, not knowing the endless impact it would have on her community at large, let alone how intimately and personally it would guide my own journey. I don’t know how my writing will affect the world at large, but it cannot happen unless I write.
Finally, I write because I am a writer. I have written stories, poems and observations since I was a wee lass, most bad, some middling, and a few good. I got a degree in writing (fun trivia fact!) because I loved to write so much. I feel better when I write. I love the sensation of typing, I love the flow of words coming from my brain to my hands to the screen. I write because I must. I write because the only everlasting legacies we have are our children and our written word.
I hope that what I write here has some meaning for all of you out there, but even if you only walk away with a slightly better understanding of another person’s life, I will have done my job.
So much love to all of you who comment and help me stay motivated to keep on writing! You have no idea how much it helps to see your responses here!
Netty said:
(((((((((((((((antepartum anxiety baby biopsy birth story cancer Caring Bridge cloth diapers dermatology development doctors Emmie family friends good news gratitude happiness holidays hospital house jasper language love melanoma monthly letter nablopomo natural birth OB oncology pain parenting Peter PET scan photography pictures pregnancy random thoughts recovery sewing sleep support surgery travel treatment weekly photo)))))))))))
I can only say you have the gift.. to share your story.. and it weaved into our story.. the girl.. woman .. mother.. wife.. friend.. daughter and heroine … carrying this torch with such grace that is naturally you.. how can we not be touched?.. I am forever changed.. Thank you.. ((((( Keep on writing girl!!)))))
(((((((((((((((((((((((((SHANNON ))))))))))))))))))) (((((LOVE LIGHT HEALING)))))
((((((((((((((((((((((((((((((((((((LOVE IS THE ANSWER))))))))))))))))))))))))))
Amy said:
I’m a fellow Nestie (ACDC) and started following your story there. I’m sorry to say that I’ve never met you IRL and don’t post a whole lot. But, I wanted to let you know how strong and courageous you are. You are an inspiration and your blog is beautiful to read, even the hard things. Keep going! I think you are absolutely amazing and your story is incredible and it needs to be told!
Bill Casey said:
Your writing helps bridge that gap of distance which has been the problem I have had for being so far away from where you grew up and more so since you started the challenge with Cancer 4 years ago now. I treasure your thoughts and words so much. Thank you for sharing all and not give in! Your persistence and patience has made me so proud of my wonderful niece!
arlene stredler brown said:
Shannon; You are an inspiration. This feeling starts with your description about your writing. As a writer myself, one who does it because I am asked to write, I have never felt the freedom of expression that you describe. I will aspire toward that.
And, you are an inspiration in another important way. That is the way you describe the events of your life. When you and I worked together at CU, I knew there was something extraordinary about you. My notion was affirmed through your accomplishments at TCH. And, my impression is further affirmed by the way in which you manage (not to mention share) the events of the past 4 years.
All who read your words and all who share time with you can take away something special. It is very generous of you to share so many of the events in your life and your feelings with all of us.
arlene
Shannon said:
Thank you for this heartfelt note, Arlene. I have so much respect and admiration for you and the work that you do; it means all the more to hear these words from you.
Julie Hogan said:
I have always thought writing is a gift from God. There have been many moments in my life where I have felt that I acted as a fountain pen belonging to a life force much larger than me. Writing often brings people together in a way that cannot happen through any other means.
In your writing, I feel your vulnerability, your set backs, your successes. All entries contain hope for a future, whether here or in another place. I thank you for your gift and having the courage, a calling really, to touch all your readers in a special place that unites us all together.
Pictures are also such a powerful communication tool. Your story, through words and pictures, are so sincere, authentic, and real. It makes me wonder how I would react if this was me, instead of you. I think your writing touches all who read it in a purely human way. Humanity mixed with divinity gives us a deeper glimpse into you and ourselves.
Thank you Shannon for sharing your journey through you carefully chosen words. Your’s is perhaps one of the most important pieces I have been honored to read. I love you, your beautiful family, your wide basin of friends, and feel filled with gratitude for sharing your journey….our combined human journey…on this planet. God bless you!
Ellen James said:
Shannon, you don’t know me, but I’m a friend of PJ and Heather’s and felt that I should say hello since I’ve been reading your blog for quite some time now. I used to live in the apartment PJ and Heather are currently living in, and now my husband and I live in a different apartment in the same building. PJ and Heather are dear friends of ours and we feel so lucky to know them!!
As I said, I’ve been following your blog for some time now and it’s truly remarkable. Your writing is so engaging. The way you are so eloquently candid and honest is really inspiring. Your strength in all you’ve been through is truly impressive. Emmie is so lucky to have you as her mother.
I started following your blog because I didn’t want to have to burden Heather and PJ with giving me updates every so often. Following your blog has also led to something more though.
My husband and I are both nurses and I know that as health care professionals one of the main things we lack in caring for people is a true understanding of what a person is going through. Although I will never understand what you’re truly going through (until i perhaps do myself), your writing allows me to get a deeper understanding of the inner thoughts and experiences that a person has when they have cancer. So, I want to thank you. Thank you for being so open, writing often, and sharing intimate details of what you’re going through. It’s something to be admired and is truly making a difference in many peoples’ lives.
Shannon said:
Thank you for reading and commenting! It means a lot to me and I’m so glad that my words might help impact your interactions with patients. I know it’s so hard to be a provider and stay compassionate; it’s great that you are mindful of that!